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Using the website is also secure and private, as all communication with paper helpers is encrypted using layered encryption.Palliative Care – Palliative care is the care provided to children with life-limiting or life-threatening illnesses, and their families; it focuses on comfort and quality of life and support for the child and their family. Palliative care for children and young people with life-limiting conditions focuses on comfort and quality of life for the child and support for the whole family.

What is Palliative Care?

Pediatric palliative care is focused on a child’s physical, emotional, social and spiritual wellbeing. It involves the compassionate care of the whole child – body, mind and spirit – as well as support for the entire family. Its goal is to maintain quality of life in conjunction with curative treatment. Palliative Care is not giving up hope. It does not require stopping treatment but rather works to build a comprehensive team that can address all aspects of a child’s care. It often begins when a child is diagnosed with a serious, chronic or life limiting condition and can continue as long as the family feels it is beneficial. Palliative care is provided by a dedicated team and can be offered in the hospital, in community-based settings or at home.

Palliative Care:

  • Helps support families with medical decision-making
  • Honors family beliefs and preferences
  • Offers acute and chronic pain and symptom management
  • Applies integrative care techniques such as relaxation and massage therapy
  • Provides emotional and spiritual support for the whole family
  • Arranges hospice and end-of-life care when needed
  • Helps families cope with grief

Why Choose Palliative Care?

Palliative care is often helpful to families who are struggling to make decisions about their child’s medical care; are concerned about managing their child’s pain and symptoms; or need support through the end-of-life and bereavement process.
A consultation with a member of the palliative care team can be helpful as soon as families receive the diagnosis of a serious or life-limiting condition. The team helps
children live as comfortably and as fully as possible with their condition, and helps families prepare for peaceful transitions, without ever giving up hope.

Team Approach

The palliative care team supports the family as they talk through their fears, goals, hopes, and wishes, thus determining how best to meet their needs on their terms.

Often, older children and teenagers (both patients and siblings) join in the discussion.
Palliative care maintains clear and regular communication with the family and the child’s medical treatment team and makes recommendations for supportive services, whether they are provided in the hospital, at another facility or at home.

Members

Members of the palliative care team include:

  • ƒPhysicians
  • ƒNurses
  • ƒSocial workers
  • ƒPsychologists
  • ƒNutritionists
  • ƒChild life specialists
  • ƒPastoral care providers
  • ƒPhysical therapists
  • ƒPain management specialists
  • ƒPharmacists

Thanks to the Thomas P. Ferry Palliative and Supportive Care Team at Nemours|Alfred I. duPont Hospital for the information on Palliative Care.